HAE Canada continually strives to learn about the issues and challenges HAE sufferers face, so that we can best determine how best to assist those living wth this ultra-rare disorder. To achieve this, it is important for us to keep your records updated with regards to your contact information and some general questions pertaining to you and your family living with HAE. An HAE Canada volunteer will be contacting you over the next month or so to update the valuable information required, so we may better serve our memberships’ needs. Updated information is crucial for us when lobbying for and moving forward with: Government, to secure the availability of the most current and effective treatments in Canada; education of hospital ER Departments; general awareness in reaching out to those HAE patients not yet diagnosed; etc.. Please note the information updated in this call remains confidential and the data collected will be kept completely confidential/anonymous, for HAE Canada’s use only. We would like to thank you in advance for your cooperation with assistance in updating our files, so we may better serve your needs as HAE Canada members.
Your HAE Canada Team